One year.

Today marks one year since Soren was first diagnosed with something that required urgent attention at Boston Children’s. Most of you have followed our journey since then, and we’d expect most of you are surprised how time has flown by.

But this surprise pales in comparison to our amazement with how Soren looks and is doing. I’m going to let the pictures below do most of the talking, but here are a few details. Soren has gained 15 pounds and grown 4 inches in the past year, is now one of the fastest 7-yr old swimmers in New England, and brings nothing but smiles to his parents and teammates when he’s tearing up the baseball diamond. He remains the prankster, the caring classmate, the inspiring and thoughtful (at least sometimes) big brother. He might be a bit more of the cuddlebug he always was, but we’re not complaining. And he honestly doesn’t think anything of what he endured, nor does he want any extra attention for it, no matter how much we want to tousle his new, very curly (no longer straight), blond locks.

I know that many of you still want to know how he — and we — are doing, and we remain so grateful. So: we’re great. As this summer became a reality, and as the smells, and the angle of the sunlight, and the aberrant rhythm of summer camps, and the beach, and fishing, and walks to ice cream, as all of these summer-in-the-Seacoast moments returned, we were constantly reminded: this feels like last year. What were we doing last year at this time? And what are we doing now?  

No matter what the daily stress or little hassles, we know: things are fundamentally good. The amplitude of our anxiety cycle between monthly visits for checkups at Dana Farber is dampening, and as a family, we’re slowly dipping our toes further into the pool of normalcy.

As always, we thank you for your love and support.

Vaughn, Erika, Soren, and Harlan

Soren and Mom on the last day of school June 2014
Soren and Mom on the last day of school June 2014
Baseball skills entirely foreign to a couple of swimmer parents
Baseball skills entirely foreign to a couple of swimmer parents
Brothers and Bubba, fresh back from a trip to DC. Go Commander Harlan!
Brothers and Bubba, fresh back from a trip to DC. Go Commander Harlan!
Photo evidence from the Jenny Thompson Invitational
Photo evidence from the Jenny Thompson Invitational
Surf camp - one of the greatest experiences of our lives as parents
Surf camp – one of the greatest experiences of our lives as parents
Harlan's giant perch while Soren fights another
Harlan’s giant perch while Soren fights another

 

Happy, goofy cousins!
Happy, goofy cousins!

 

 

 

 

 

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One year.

10 thoughts on “One year.

  1. Sarah Downey says:

    I’ve been fortunate to run into you guys the past couple of weeks at swim meets or coming from the pool. I saw Soren about a week ago as Erika was coming out of Swazey and I was going in. I love the curly locks (although she told me that Soren does not share that same sentiment). I remarked to Erika about how much he has grown since I last saw him at TSSA Champs. So happy that you guys have battled this successfully and Soren is back to being a happy, healthy FAST 7 year old boy (now with curly hair!). I look forward to seeing him swim this fall!

    Like

  2. Robin says:

    All my love! Your boys are just the cutest curly or straight hair! Can’t get over their smiles and you all four have a lot to smile about! Hope to meet up soon

    Like

  3. Jessica Bolker says:

    Thanks for posting this. I, too, had been recalling where you guys were this time last year – and being grateful for where you are now. Nice to get some details, and photographic evidence!

    Like

  4. Pam says:

    Where’s the wicked huge “LIKE” button for this post? What a wonderful update to read. So glad for you and your family that life has returned to normal.

    Like

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