Today marks one year since Soren was first diagnosed with something that required urgent attention at Boston Children’s. Most of you have followed our journey since then, and we’d expect most of you are surprised how time has flown by.
But this surprise pales in comparison to our amazement with how Soren looks and is doing. I’m going to let the pictures below do most of the talking, but here are a few details. Soren has gained 15 pounds and grown 4 inches in the past year, is now one of the fastest 7-yr old swimmers in New England, and brings nothing but smiles to his parents and teammates when he’s tearing up the baseball diamond. He remains the prankster, the caring classmate, the inspiring and thoughtful (at least sometimes) big brother. He might be a bit more of the cuddlebug he always was, but we’re not complaining. And he honestly doesn’t think anything of what he endured, nor does he want any extra attention for it, no matter how much we want to tousle his new, very curly (no longer straight), blond locks.
I know that many of you still want to know how he — and we — are doing, and we remain so grateful. So: we’re great. As this summer became a reality, and as the smells, and the angle of the sunlight, and the aberrant rhythm of summer camps, and the beach, and fishing, and walks to ice cream, as all of these summer-in-the-Seacoast moments returned, we were constantly reminded: this feels like last year. What were we doing last year at this time? And what are we doing now?
No matter what the daily stress or little hassles, we know: things are fundamentally good. The amplitude of our anxiety cycle between monthly visits for checkups at Dana Farber is dampening, and as a family, we’re slowly dipping our toes further into the pool of normalcy.
As always, we thank you for your love and support.
Vaughn, Erika, Soren, and Harlan