“Not my best day,” said Soren this afternoon. He is pretty run down after continuous chemotherapy since Thursday. He has picked at his meals for the last few days (except for pancakes this morning, which he devoured after no dinner the night previously) and has had to work hard to be social and active at much.
There were a few notable exceptions: a battle royale of Mario Kart with buddy and former roommate Jacob (age 10), some excellent math homework that he showed off during morning rounds (thanks Berwick buddies!), and some pillowcase sewing with some great volunteers.
Yet I was nearly brought to tears with pride by the number of very kind complements other grown-ups (nurses, doctors, volunteers) gave him today. “Doing so well!” (many times over), “So polite and grown up! I can’t believe he’s only 6 the way he speaks.” “So funny, what a joker!” That’s our boy!
Like parents of any 6-year-old, however, we do get the private challenge of a new reservoir of will to be testing and challenging. Even under the weather, Soren is a skilled negotiator.
Tonight, the chemo drip ended, and he’s now enjoying a night of rest (we hope) before another intrathecal chemo treatment. If he recovers well, we might go home tomorrow night, which we (especially Harlan) would all love. Our major scan, scheduled originally for tomorrow, was postponed for next week’s clinic visit, which is just as well. We’ll all have been challenged enough by week’s end.