Introduction

You probably all know Soren as one of the healthiest, most athletic 6-yr old boys you’ve known. A few weeks ago we noticed his voice had been funny and local doctors believed the cause to be a swollen tonsil that needed to be removed. However on 7/23 Soren complained of severe stomach pain and very early on 7/24 Erika and Soren arrived in the ER of Boston Children’s. I (Vaughn) was out of town, so Erika handled this herself heroically. Following 72 hours of constant scans and biopsies in the ER/pediatric ICU, a great team determined that Soren has lymphoma. He has a particularly aggressive (and often treatable) form known as Burkitt’s, which has spread to his liver, kidneys, intestines, and obviously, throat.

Soren began chemo on Friday 7/26 and is doing well so far. His throat tumor has shrunk remarkably, well beyond the biopsy. The first week is a light course, but the first of multiple heavy courses (and all of the side effects) will begin on Friday 8/2. Given that we don’t know how he is going to react to that and they start to greatly restrict visitors at that time (due to the infection risk to Soren), visitors are welcome now. Soren tires a bit more easily now and is constantly connected to an IV but other than that is the same old Soren.

The current treatment course (if everything goes as planned – we hear that it never does — is 4-6 months.
This is going to be a long road and I am sure that we will need to utilize every ounce of support and offer of help along the way. We are grateful that Eric, Erika’s dad (“Bubba”) was here at the time of crisis and intends to stick around as long as possible. We have many folks willing to care for our corgis, Linus and Huxley. And food at home will be helpful, but especially for the parent staying in Boston (we are swapping), so healthy (greens and fruit) and portable meals would be amazing. I understand that gas cards and things that enable travel and hospital room living are already in our friends’ minds, and we are so grateful.

Soren’s doctors have already remarked that he is exceptionally tough (“the most stoic child I’ve met in 30y”), polite, and in good spirits. We are so proud of him. He is still a goofball and he’s sad he is missing baseball and soccer camps and daily swims. His competitive streak has turned to the Wii, which we previously withheld.

Advertisements
Introduction

2 thoughts on “Introduction

  1. Loren says:

    A friend of mine whose son has been going thru treatment for leukemia said the Ronald MacDonald house close to Children’s Hospital is wonderful and is worth you looking into for breaks and alternative places to stay.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s